Swallow Study Cancelled

Well, I guess I was right to wonder how a swallow study is done on a kid who doesn’t eat or drink anything by mouth. My question lead speech, the specialty who performs a swallow study in combination with radiology, to talk with Sam’s ENT. They decided we have to do feeding therapy before they perform the swallow study. Bummer, but it’s okay. 

Yesterday was not a good day in our house. Let’s just say, the cancelling of the swallow study was not the only, nor the worst, of our bad news for the day. When it rains it, it pours, BUT there will be a rainbow. And, like I have said in the past, it could be so much worse. 

Again, don’t just keep Sam in your prayers. Each time you pray for our Superman Sam, pray for the hearts of me, Sean, Will, Abby, and Ryan. My kids lives have been turned upside down over the past two years, and to say all of this hasn’t affected them, would be silly. Someday, I will write about the other half of our story, but for now, I can only ask for prayers. 

Thank you for continuing to follow Sam’s story. I’m so thankful to the nurse at Children’s who encouraged me, so long ago, to start a CaringBridge site. You have no idea how much therapy I get from writing and reading previous posts and comments. I find myself going back and reading things I would have never remembered had I not journaled Sam’s story. Sometimes, if I’m having a bad day, I read past comments and my heart smiles again. Thank you for your encouraging words. They go a long way and are not forgotten. 

6 thoughts on “Swallow Study Cancelled

  1. May God continue to bless you, Sean, and each of your children. You are all fighters in the faith. Romans 5:1, Because we are justified by faith, we have PEACE with God. Ephesians 2:14, Christ Jesus is Himself our Peace. Stay strong!

    Liked by 1 person

  2. Jamie,
    Thanks so much for the update. Sorry yesterday did not go as great as you had hoped and prayed. But reading your journal of the day of the surgery, your right things could be worse. I will continue to pray for Superman Sam, and also the whole family. I can not imagine how hard it all is. Stay strong, give Sam a hug from Mark & I.

    Liked by 1 person

  3. Praying that although you may not be able to “see” it right now…that all the struggles your family experiences…will cause each of you to become stronger and more resilient! Parenting is difficult…parenting while caring for a child with complex medical needs is undefined. Praying for peace for everyone as you navigate one day at a time!

    Liked by 1 person

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