On Monday night we strolled Sam down to surgery again. They discovered his esophagus had narrowed down quite a bit since the last dilation done, only about a week prior. It wasn’t as strictured as the the first time, but enough to have it difficult for things to pass through. They dilated again.
He rested overnight and started feeds the next day. He’s on day two of feeds. The feeds were going well, up until later this evening. We decided not go up on his feeds at the designated time, and try keep them running at the slow rate they are. He’s sleeping well now, without any symptoms. Let’s hope, pray, and believe he can continue to go up on feeds without having to stop them.
Sam’s Surgeon has decided to schedule another endoscopy for early next week. He will take a look and dilate his esophagus again if needed. For whatever reason, Sam’s esophagus thinks it needs to close up post surgeries. We may have to continue this process, which is not new to Sam, but not fun for him either. Pray his esophagus stays open and will need minimal dilations.
Home. I’ve decided not to bring it up anymore. Sam has a great team, who has his best interest at heart. Home will happen when it’s best for Sam.
Faith Over Fear!
Sam Strong!
Oh God Jamie and Sean I was so hoping you could take that little munchkin home soon but at least he is in a good place and will get the best care thinking about you and that little peanut often will say extra prayers for Sam and your whole family hugs and kisses to Sam keep your chin up guys you are great parents and doing a wonderful job he is a very lucky little boy to have you as parents
We are all praying for Sam and all your family. Sending our love 💕
🙏🏻🙏🏻 Prayers for all of you.
I woke up this morning and as I brought you and Sam to the Lord this song immediately took over.
Great is Thy faithfulness
Oh God my Father
Morning by morning new mercies I see.
Thou changest not,
Thy compassions they fail not;
As Thou hast been Thou forever will be.
Great is Thy faithfulness!
Great is Thy faithfulness!
Morning by morning new mercies I see.
All I have needed Thy hand hath provided
Great is Thy faithfulness Lord unto me.
Summer and winter and springtime and harvest,
Sun moon and stars in their courses above,
Join in all nature in manifold witness,
To Thy great faithfulness, mercy and love.
With much affection on this day
Mona
Praying for Sam’s little body, your peace and rest and that the grace of God will super abound with all the family members at home and waiting for your return…strong and healthy!
Continued prayers! God is good and he can use all of our frustrating times for good somehow! Praying for your family at home too!
Sent from my iPhone