Besides his meds and water, Sam has not had anything in his stomach for over two months. I think it’s safe to say, his gut has had rest. We are going to introduce feeds into his g-tube (feeding tube) very soon. It will be a very, very small amount, and we will slowly add more as he tolerates it. We are nervous and excited.
Sam has otherwise been doing great! “Eating” through his bloodstream doesn’t seem to phase him much. He’s not in school yet, but he’s been able to go to occupational therapy and speech comes to our house once a week. He keeps himself busy organizing and being on his IPad more than he probably should be.
PICC line dressing changes are getting easier each week. He seems to fight less and knows the worst part is when his infusion nurse has to take off the old dressing. Getting his TPN (nutrition) started has become a part of our evening routine and it feels normal. I will be happy though when the PICC line is gone. It’s not the fastest process in the world and let’s face it, not normal.
Please pray Sam tolerates his feeds and he will not need the surgery his surgeon talked about before Christmas.
I hope you and your family had a very Merry Christmas and Happy New Year! I know I got my Christmas wish and very thankful for it.
Sam Strong
Faith Over Fear
❤️🙏
We will keep you guys in our prayers that he tolerates his feedings and don’t worry about his time on his iPad pad pick your battles seems like that would be the least of your problems God bless you all you have a wonderful family
Love you guys ❣️ special holiday with the entire family 🎄 happy for you all!!!
Prayers and positive thoughts coming your way 🙏 Nana
I will continue to pray🙏🏻🙏🏻 Great family picture ❤️
What a Beautiful Family! If his IPad keeps him smiling and happy, who cares? You are awesome parents. God is Good, and I will keep Sam in my prayers.
Stephanie
Such a great photo of you all! Prayers tgat Sam tolerates his feedings!
I really hope feedings go well and surgery can be avoided. You all will continue to be in my daily thoughts and prayers. Sending lots of hugs your way! 💕
Praying for you and your family, Jamie! It was so much fun catching up with you and the Scherber’s on Friday! Blessings! 🙏🏻 👍