Sam’s day has been quite rough. Man, what a roller coaster. Just when we all think he’s turning the corner, things take a sharp turn in the wrong direction.
Some symptoms are new and others have been off and on since he’s been here. This is nothing. It’s just a fluke.He will get through this.
Please pray for my little fighter. Pray his blood pressure can be controlled. Pray for no more red blood coming from his trach (breathing tube). Pray for less secretions. Pray his lungs are clear on the x-ray results. Pray for no more throwing up. Pray for his heart rate to come down. Pray for his medical team. Pray for his momma, daddy, sister, and brothers too. Pray they can get things figured out and we can go home. Pray for no more sharp turns.
In the two and a half years Sam has been home from the hospital, we have made many trips to the emergency department (ED). In those two and a half years, we’ve always been able to go home, which according to everyone here is just shy of a miracle given Sam’s history. Although we love the people here, we do everything we can to stay out of here.
Unfortunately, there isn’t a clinic or urgent care for Sam. When things go south, it’s either maintain at home or go to the hospital. And unless Sam’s feeding tube comes out or one of his docs wants him to be evaluated, we do our best to maintain at home.
Based off Sam’s symptoms, Sam’s GI (gastroenterologist) doc instructed us to take him in yesterday. I was a little shocked when the ED doc thought it would be best to keep him. I, of course, did not plan for getting admitted. No extra clothes or toothbrush for me. I feel like I have to keep apologizing for my stinkiness. 😂
I thought once Sam got some IV fluids in him, he would perk up and we’d be heading home. Not so much. He’s still the same little lethargic boy we brought here yesterday. He’s not worse, but not better either.
They are checking all the boxes and are trying to figure out what’s going on. It could be tracheitis, which doesn’t show up for twenty-four to seventy-two hours. He might need another dilation. It could be just a cold. Although, like I’ve said in the past, it’s never “just a cold” for Sam. There are plenty of places he could have caught something. The two biggies are starting school and being in the ED last week cause his feeding tube came out. School = germs and the ED = even scarier germs. They are also monitoring his blood pressure as it has been elevated. With his history of hypertension, there is concern, but they could also be up because he’s sick. Again, there are so many things it could be. There are usually no easy answers with Sam. He a complicated kid.
Let’s pray whatever it is, it will run it’s course and/or get fixed without complications. As of now, he needs to tolerate feeds before we go home.