Today is World Down Syndrome Day. With Sam’s complex medical needs, this has only been another day to us.
Sam has an extra chromosome.
Sam can’t eat anything by mouth. One hundred percent of his nutrition is via a feeding tube. He breathes through his neck. His current list of diagnoses is longer than I thought could be possible.
If I could take away all the pain and suffering he has gone through, I would.
There aren’t any easy days with Sam, but the beauty of his captivating personality and infectious smile make every day worth it.
I know without a shadow of a doubt, the part I would keep is the extra chromosome.
If you were to take away Sam’s extremely high medical needs, he is the most happy-go-lucky little guy. He smiles with his entire body, from the top of his head to the tips of his toes, and lights up any room he enters.
There are no, “buts” on my love for Sam. I love him unconditionally. Period. End of sentence.
I would give anything to have a healthy little boy with an extra chromosome. Given the chance, I would not take that part away from him.
He makes me better.
I believe people who have an extra chromosome give us the tiniest glimpse of God’s love for us. The love in my little boy’s heart makes my heart want to explode simply thinking about it.
Sam has an extra chromosome and I am grateful for it.
Today, like any other day, I celebrate Sam’s extra chromosome.