As of right now, Sam will not need surgery. Thank you Lord!
The surgeons were pretty convinced yesterday morning Sam would need surgery based off the six ultrasounds he had throughout the night on Sunday. As they came and pressed on his tummy throughout the day yesterday and rested his belly, they became less convinced Sam would need surgery.
Today we started some Pedialyte at a very slow rate in his g-tube. Those of you who know Sam, you read right, I said his g-tube, not his j-tube. After the misery of the getting the j-tube inserted in radiology (not surgery here), surgery pulled his j-tube that evening possibly thinking it was instigating the intussusception. For a few reasons, this could be a disaster or a blessing in disguise.
One reason is the j-tube has often kept us out of the hospital when he gets sick and is not tolerating Pedialyte or formula in his g-tube (stomach). Another reason is that he is currently dependent on his j-tube for half of his daily feedings. The blessing would be, he will tolerate ALL his feedings in his g-tube and not need the j-tube. We would absolutely love only a g-tube.
The surgeon and nurse laughed at me in the middle of the night when the j-tube was pulled and the g-tube was put in when I said, ”Oh it’s so beautiful.” If you know anything about feeding tubes, you can understand my excitement. If you know Sam medically, you can understand my apprehension. It’s going to be a blessing in disguise.
The best news is Sam woke up this morning clearly feeling much better. He’s sitting up and even giving quite a few smiles. He hasn’t made any sounds yet, but I don’t think we’re far from that.
The hotel we were staying at did not have anymore availability, but we were able to get a room at the Ronald McDonald House here and we able to cancel our flight with no fees.
I’d be lying if I told this is easy, but you know me, I like to stay focussed on the perks. It’s much better for the soul. I also believe we are in the best place possible. Cincinnati Children’s is internationally known for caring for kids with airway and esophageal disorders. It doesn’t take long having a kid like Sam to see that.
Pray Sam will tolerate his feeds, the intussusception has fixed itself, it will not recur, and for NO MORE SURPRISES!
Thank you for walking alongside us in this journey, the continued prayers, and the encouragement. They both go a long way.
Faith Over Fear!
9 thoughts on “Looking Up”
Sending many prayers for continued healing for Sam and you will all be on your way home soon. 🙏♥️.
Sending continued prayers! 🙏🏻❤️
Praying for the best outcome 🙏🏻🙏🏻
You’ve been in my thoughts and prayers!
Love you guys! Prayers of tolerance and healing. Trusting Gods plan , not ours. All the best! I ❤️ the pics.
God has brought you this far, and He will continue this journey. 🙏🙏❤️
It is SO good to see Sam’s smiling face! Trusting that this hurdle is over and Sam will continue to get stronger and stronger with NO reoccurrences!
Praise God for the victories along the way! Praise God for your continued stamina! Praise God for each precious day you have together with a smiling child! Love you much, Jamie! Praying for your 2 other children and their end of school year celebrations! God is SOOO faithful! 🙂
Our Family keeps cheering you all on! Thank you for all the updates. Always in our prayers at home. Good news, bad news…Sam is an inspiration! He is blessed with the best family ever!!