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Mar 23

Only spending one night in a hospital feels a little weird, but man does it feel good. We got home with a naked neck early this afternoon. I cannot stop running my hands over his bare neck!!!

Sam had a fantastic night. He decided to make his already exhausted mama more tired and stayed up WAY past his bedtime, but I wasn’t surprised. His oxygen was 100% for most of the evening. It did get lower throughout the night, but nothing that concerned me or the medical staff.

Doing his nebulizer treatments is a new thing for us. He thought it was pretty funny to have the mask over his nose and mouth and not over his neck. He did such a great job. I was so proud of him!

Not suctioning his trach site is another new, but great normal. He’s doing a great job of clearing his own secretions. Sam has always had a good, strong cough, and we are thankful for that.

Sam’s MRI did show something that will need to be addressed, but it was not our focus for this hospital stay. The good news about it is that it gave answers to something that we’ve been looking for a LONG time. Prayers for Sam’s doctor’s and our discernment on this.

Prayers for our first night being at home. Sean and I are a little leery because we are not used to things going smoothly, but that doesn’t mean they can’t! We are SO ready for this new chapter!

Thank you so much for your continued support. It warms our hearts to read your messages and we feel all the love so much.

Faith Over Fear

Sam Strong