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Humor for the Day

In our house we have playfully deemed my husband the principal at our school. When my kids start driving me nuts, I let them know I will be making a phone call to the principal. They usually start behaving real quick.

The teacher got a warning from the principal the other day.

This letter came “anonymously” from…

my daughter.

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I did tell the principal he should start video taping my classroom to see what’s really happening.

Happy homeschooling!

Hand in there, the school year is almost over!

Homeschool, What?!

MANY of us are parents or caregivers who have turned into teachers overnight. Who would have thunk?! 

Change is not easy, but with a little elbow grease and most importantly an overall good attitude, you can do it.

Yes, at the beginning, we have to work out the kinks and navigate through the unknowns, but the more we focus on what we are going to do with the change and not dwell on what has changed, the more successful and happy we will be.

Like I’ve said before, technology can be a blessing and a cursing. Right now, in the world of education and beyond, it has been an absolute blessing, no doubt.

I don’t know about where you live, but the teachers and educational staff in our community have really pulled together and made the best of a tough situation. And we are the largest school district in our state.

Many teachers are working hard if not harder then they did before to do their best to keep up with our children’s education. Let this time remind you of how hard teachers work to educate our children. This situation in not ideal and they would rather be in the classroom with our kids.

Hopefully you have settled into somewhat of a routine. Is it going to be the same as if kids were in school? No.

I don’t know about you, but I’ve caught myself having yelling matches with my kids and their schoolwork. It’s funny, because I was a teacher, so you would think I have more in my tool belt when guiding them with their schoolwork, but all that education and patience seems to go out the door when it comes to your own kids. Hahaha!

I’m so grateful I don’t have to plan the curriculum!

This is tough, but let me tell you, there are much tougher things.

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We can fight the change or we can embrace it. Knowing what it’s like to live in a new normal, if you can embrace the change, you will stay mentally strong.

While we are quarantined at home, and things are out of the norm, someone else is grieving the loss of their daughter/son to Suicide, or just found out they had cancer, or have been waiting in the hospital for over a year with their child for a bone marrow transplant, or the list goes on and on and on and on. It can always be worse.

Let’s not forget there are many out there who have been through or are currently going through far harder things than suddenly becoming their child’s teacher.

Teachers are working very hard to keep things as normal as possible for our kids. Many have kids of their own at home, while also working full-time.

I’m not saying we can’t have a bad day, here and there, but let’s refuse to let COVID-19 steal our joy and be thankful for what do have!

Let’s be grateful for our educators who are working hard to make the best of the cards they’ve been dealt.

Hang in there.

This too shall pass. 

Singing in the Storm

With all the craziness happening in the world, I thought it would be a good idea to bring out the perks because that is what I do when things get tough and let me tell you, we know tough times. Any parent who’s had to watch their child fight for their life knows tough times.

Thinking back, there are countless times I begged God to keep our son alive, promising Him, no matter the outcome I would still serve Him. I’ve witnessed my son go into cardiac arrest four times needing more than ten minutes of chest compressions on one occasion. In his short life he’s had several major surgeries and has been sedated well over fifty times. His life depends on a breathing tube and one hundred percent of his nutrition is through a feeding tube. We’ve gone from a two income family to one. And that’s only piece of the story.

While everyone seems to be panicking, I can honestly say, besides seeing empty shelves at the grocery store, and we’re hunkering down more than normal, our lives have not changed all that much. We are use to being “stuck” at home. When it comes to Sam, we don’t go into crowded areas very often and when we do, we are vigorously washing hands and using hand sanitizer. I go to bed at night praying God will protect Sam from any germs he came in contact with.

In our normal, everyday life, we don’t ignore what’s tough, but we don’t dwell on it either. We do our best and know there is so much we don’t have control over.

We know one tiny germ can be life threatening for Sam. Everyday we get with our sweet little boy is a blessing we know cannot be taken for granted.

Sam falls in the high risk category for COVID-19, just like he does the flu. Before everything was shutting down, he had been pulled from school because influenza had been going around. After so many confirmed cases of influenza, Sam’s doctors know the risks outweigh the benefits of school for him.

The Coronavirus has changed life for almost everyone in some way shape or form. If you have anyone in your life who is over the age of sixty-five, they fall into the high risk category for COVID-19.

That being said, for those of you who might be letting fear creep in, with what’s going on, here are some ways we keep normalcy in our lives.

  • Pull out the perks. Yeah, we were pretty bummed to find out Sam’s trach will not be coming out anytime soon, if ever, but that trach is what has given him life. Sometimes it’s hard to pull out the perks, but everyday, try to pull out at least one perk.
  • Be responsible and do your part by following the Center for Disease Control and Prevention (CDC), where you will find the most accurate information, but don’t let it consume you. If you watch the news a lot and your feeling anxious about what’s happening, take a break from it for a few days. You can follow what’s happening without watching the news by going to the CDC website. I’m not on social media, but from what I’ve heard, you might think about taking a break from that for a bit too.
  • Laugh even when it’s hard.
  • Take one day at a time. I’ve lost track of how many times our days have taken a completely different path than what we had planned since Sam. We make our plans, knowing they could be altered. Keeping this mindset has helped us be adaptable and flexible with whatever changes need to be made.
  • Call someone you know will lift your spirits. It’s important to note, I didn’t say text.
  • Let go of what and who you cannot control, which is pretty much everything, and for sure everyone, except for you and your actions. I’ve learned as soon as I start to worry about something, I try control the situation, which I generally regret doing, and it often seems to make things worse.
  • Sing in the storm. For those of you who have followed Sam’s story, you have probably learned my faith has played a vital role in keeping a smile on my face. Along with my faith, comes the music I listen to that sometimes bring on heavy tears that needed to fall and then a hope that gets restored. Sing in the storm, knowing the storm might bring wreckage, but the sun will eventually come out. Raise a Hallelujah

I pray God will give you His peace that passes all understanding as you navigate through the unknown. I pray you can focus on what’s good, and be mindful of, but not dwell on the bad. I pray you are doing your part to slow the spread without panicking and letting go of what and who you can’t control.

You’ve got this!

To those of you who believe, I leave you with a profound statement I heard about two years ago.

You can worry or trust God, but you can’t do both.

FAITH OVER FEAR!

COVID-19 AKA Coronavirus

About two weeks ago, I did my usual run to the pharmacy to pick up Sam’s meds. We had been running low on hand sanitizer, which is a staple in our house so I figured I would pick some up.

I ventured over to the aisle where I knew I would find the hand sanitizer. As I turned the corner, I noticed empty shelves. You guessed it. There was absolutely no hand sanitizer. That’s silly, I thought to myself, I guess I’ll get it at Walmart. The shelves were completely empty there too. For real?! This can’t be a result of people freaking out about the Coronavirus?! I’ll try Amazon. Nope. I’m not paying that kind of money for a six fluid ounce bottle!! 

This is a true story. It’s hard for me to understand. As you are probably aware, there are many other things flying off the shelves besides hand sanitizer. Being precautionary is one thing, but wiping out stores tells me fear and panic are involved.

We are now on our last bottle of hand sanitizer and I still haven’t been able to find any. I’m not going to bend over backwards to find it and I’m not going to pay a pretty penny for it. We have kind people in our life who know how important hand sanitizer is in our house and have bought some for us.

People are living in fear. Fear of what might or could or might not happen. Being precautionary is one thing, panic is another.

We have a medically fragile son. How many are feeling and reacting to the Coronavirus, we could feel and react the same way each and every day. This is the reality of anyone who has a medically complex child. Every single day, germs are very BIG deal in our house.

We choose not to live in fear.  We do our best, but that’s all we have. We take precautions, but don’t let the weight of what the germs “could” do to Sam consume our minds. We continue to wash our hands and say our prayers because Jesus and germs are everywhere. I try focus more on the Jesus side of things because I believe His plan is bigger. 

Worry is a thief of joy. The more you dwell on your worry, the more and more tangible it becomes. A worry can’t change anything. It is just that, a worry. It’s our mind dwelling on the maybe. I have two things in my life right now that are legit things I could worry about. If I sat and thought about, continually talked about, read about, and listen to all the terrible things that “could” happen, I would likely drive myself nuts. We have to choose to make technology a blessing and not a cursing because unfortunately if we aren’t careful, fear and panic can easily set in.

Try not to let the fear of the Coronavirus consume you. Keep living the life you are hopefully already doing by good hand washing and staying home if you are sick.

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Cincinnati Days #4-6

We are home, exhausted, and we successfully traveled with Sam! I don’t know if I’m quite ready to travel with him for fun, but I’ll get there.

Do you want to hear the good news or bad news first? I’d love to tell you there isn’t any bad news, but then I’d be lying.

Bad news…

On Tuesday, Sam was put under for a chest CT scan. He bounced back quickly from the anesthesia like normal. Later in the day we met with a pulmonologist and a gastroenterologist. The pulmonologist had a few areas of concern from the CT scan. She reassured us, she would look further into her concerns when she was able to see better with a scope the next day. Both doctors asked a lot questions, gathering even more information than they had already received from Sam’s docs at home.

On Wednesday, Sam had a triple scope. Skip this next part of you don’t care what a triple scope is.

The scopes/OR procedure we will do are called a flexible bronchoscopy (bronch), MLB (microlaryngoscopy bronchoscopy) and EGD (esophagograstroduodenoscopy).  We often refer to this as triple scopes. The bronch is with pulmonary and the physician uses a small flexible tube with a camera on the end to examine the upper airway, with a primary focus on the lungs. The MLB is with ENT using a small rigid instrument with a camera on the end to examine the upper airway to the level of the carina (which is where the lungs branch of left and right). The EGD is GI’s scope where they use a small tube with a camera on the end to examine the esophagus (throat), into the stomach, and the top part of the small intestine called the duodenum.

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Anesthesia is no big deal for me.

Sam had a harder recovery, but was put under the day before and had a lot more done with the scopes. They also dilated two parts of his esophagus. He bounced back by the end of the day.

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My mom’s glasses are much cuter on me. Oh, and I had a minor surgery today.

After the scopes and dilations were done,  the ENT, pulmonologist, and gastroenterologist came out to give us A LOT of information. Some old news and some new. We didn’t get the hopeful news we were expecting, and we learned things about Sam we had never known before. I wish I could say the new stuff was good, but it wasn’t.

We know Sam’s trach is not coming out anytime soon and we will be making several more trips to Cincinnati.

When we left the hospital on Monday, we left thinking Sam’s trach would never come out. It’s not the end of the world, but it is a bummer when that was our expectation.

Good news…

On Wednesday, after Sam’s scopes, the same doctor from Monday gave us a little more hope. I kept asking him if there was a chance the trach could come out someday. He gave the same gentle response each time, “We have a lot of work to do before we get there.”
We prayed for answers and I would say we certainly got many.

We were definitely at the right place. Sam’s perfect imperfections are their specialty, no doubt.

Is this hard? Yes, but there are tougher things in life. At the end of the day, we have a little boy who is well worth it all. Through it all, he continues to amaze us, and everyone around him, with his strength, courage, and so much more.

The team of doctors will meet this week to discuss a plan for Sam based on his history and their own findings. We will wait patiently to see what the next steps will be.

Cincinnati Day #3

We made it here! It was a bit tough/comical trying to carry everything with only two of us, but thankfully we had TSA Cares to help. I would highly recommend using this service if you are flying with a complex child. More to come on part two of “Tips for Traveling with a Complex Child”.

The beginning of our flight was a bit disastrous, but overall Sam did really well. Sam was pretty upset for the first twenty to thirty minutes, but after that it was smooth sailing. I was definitely sweating by the time we boarded the plane. The beginning was a bit rough because we decided to board the plane last. In hindsight, we probably should have boarded earlier. This way we could have figured out how to situate all of Sam’s medical stuff. We made for some very good people watching, I am sure of it. If I was an onlooker, my mind would have been doing a lot of wondering. We are the people who get stared at, but that’s okay with me. Most stares are only sheer wonder, care, and/or concern.

Sam’s SATS (oxygen levels) dipped while we were in the air, but not enough to need oxygen. I’m happy to report after all Sam’s little lungs have been through, they’ve stayed pretty strong.

The first day was spent unpacking all of Sam’s stuff and going to bed very early from pure exhaustion. Between what we brought with us and the supplies that were shipped, it was a lot! I’ve gotten use to our normal, but seeing it all, sure puts things in perspective. Holy smokes, this kid does not travel lightly!

Sam’s Medical Supplies
That’s a lot of stuff!

The second day was much more laid back. We ventured out to the Cincinnati Zoo. Sam wasn’t able to see a lot because of his vision, but he loves being outside so it was a win, win. Another plus was how much warmer it feels here than home in Minnesota.

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A hippo is pretty cool to see this close.

I’d like to say day number three, our first venture to Cincinnati Children’s Hospital was super hopeful. Sam had three appointments. He saw anesthesiology, otolaryngology (specialized ENT), and speech pathology today. Our news today wasn’t very hopeful, but they still have lots of testing to do. We will find out more in the next few days. We will keep having hope as we always do.

Pray for hopeful answers in the next few days.

Sam Strong.

Faith Over Fear.